5 Things I Wish I Knew Before My DiagnosisIn 2014, I was diagnosed with a form of heart disease called dilated cardiomyopathy. This is when the ventricles become enlarged and can no longer pump blood efficiently. Before the...Reactions0reactionsComments1 comments
Exercise, Heart Health, and FHFamilial hypercholesterolemia (FH) is a genetic disorder that causes abnormally high levels of cholesterol. This elevation significantly increases the risk of cardiovascular disease, heart attacks, and strokes. Most people who...Reactions0reactionsComments0 comments
My Second Pulmonary EmbolismIt happened about a year and a half after my first one. Thankfully (?), I had the experience to know what was happening, so it didn’t turn into a massive...Reactions0reactionsComments0 comments
What It Means for Me to Still Be StandingWhen I was diagnosed with dilated cardiomyopathy in 2014, I didn’t know my life would change so drastically. The impact it has had on my life is beyond belief —...Reactions0reactionsComments0 comments
The Invisibility of FHOn the outside, I look like a healthy, 30-something-year-old — fit, energetic, active. But on the inside, there’s a constant, invisible weight I carry. Familial hypercholesterolemia (FH) isn’t something people...Reactions0reactionsComments0 comments
Myths and Misconceptions About Heart DiseaseThere are many misconceptions about heart disease, but the fact of the matter is it can be an invisible disease — meaning that we don’t look sick, and most of...Reactions0reactionsComments0 comments
My Stroke Rehabilitation ExperienceWhen I had a stroke and was diagnosed with dilated cardiomyopathy, I didn’t know what kind of twists and turns I would have to go through. When I had the...Reactions0reactionsComments3 comments
Being Resilient and AcceptingMost people think of cholesterol as a number they can change with diet or exercise, but those of us with familial hypercholesterolemia (FH) know it’s not so simple. This genetic...Reactions0reactionsComments0 comments
What the Symptoms of Dilated Cardiomyopathy Were Like For MeWhen I was diagnosed with dilated cardiomyopathy after suffering a stroke, I thought it was because I was pushing myself too hard. I used to compete in fitness competitions, and...Reactions0reactionsComments0 comments
My FH Treatment: Embracing an InjectionWhen I was diagnosed with familial hypercholesterolemia (FH), it was a lot to take in. Knowing I had a genetic condition that put me at high risk for heart disease...Reactions0reactionsComments0 comments
Newly Diagnosed With Cardiovascular DiseaseReceiving a diagnosis can be shocking and very difficult to deal with. Like most people, we all have plans and goals that we want to reach and are currently working...Reactions0reactionsComments0 comments
How My Hypertrophic Cardiomyopathy Diagnosis Changed My LifeDays after my sister was diagnosed with hypertrophic cardiomyopathy (HCM), my mother, now realizing that our family had genetic hypertrophic cardiomyopathy, took me in to be checked as well. During...Reactions0reactionsComments0 comments
My HCM Diagnosis: Understanding the Warning SignsI was first diagnosed with hypertrophic cardiomyopathy (HCM) in September of 2013 at the age 14, during my first month of high school. The only reason I was even diagnosed...Reactions0reactionsComments0 comments
Navigating Familial Hypercholesterolemia During the Holiday SeasonThe holidays are such a fun and festive time — but, let’s be real, they’re also bittersweet when you’re dealing with a chronic health condition like familial hypercholesterolemia (FH). There’s...Reactions0reactionsComments0 comments
How Heart Disease Changed My LifeEvery day I wake up, I realize that I’m blessed, because I have beaten everything meant to destroy me. Life is a gift and is one of those things where...Reactions0reactionsComments3 comments
Understanding Hypertrophic CardiomyopathyHypertrophic cardiomyopathy (HCM) is a type of heart disease in which the heart muscle becomes too thick. This can make it harder for the heart to pump blood. The thickened...Reactions0reactionsComments0 comments
How Is Hypertrophic Cardiomyopathy Treated?Hypertrophic cardiomyopathy (HCM) is a heart condition in which the heart muscle becomes thicker than normal. This thickening can make it harder for blood to flow out of the heart...Reactions0reactionsComments0 comments
Preparing for Surgery on Lifelong AnticoagulationI have a minor surgery coming up in a couple of weeks, and I’m going through the steps of getting ready for it. Some of those steps relate to being...Reactions0reactionsComments2 comments
What Is Coronary Artery Disease (CAD)?Coronary artery disease (CAD) is a type of heart disease that affects the coronary arteries. These are arteries that supply blood to the heart. CAD is usually caused by atherosclerosis...Reactions0reactionsComments0 comments
Navigating an Untreated SeasonLiving with familial hypercholesterolemia (FH) has always been a journey of highs and lows, but I am currently in a season of being unmedicated, and it feels particularly raw. FH...Reactions0reactionsComments0 comments