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What do you wish you knew before your diagnosis?

If you could go back to the day of your diagnosis or earlier, what would you tell yourself? Is there anything you wish you knew prior to being diagnosed?

  1. What to say to someone with a diagnosis? Here are some ideas: "I'm not sure what to say, but I want you to know I care". "I'm sorry to hear that you are going through this". "How are you doing?" "If you would like to talk about it, I'm here". "Please let me know how I can help". "I'll keep you in my thoughts".

    1. Thank you for this list of ways to help someone with AS! Many of our community members have reported that it's hard to get the support they need. Here's one of our health leaders' experiences. All the best, Kathy (Team member)

  2. Thank you

    1. For years I had hypertension drs said it was idiopathic but after loosing weight post chemo my blood pressure is wnl. Why couldn’t someone tell me??
      Now I have an aorta aneurysm I was in one hospital for a week they never saw it echocardiogram and ct chest! Thankfully I’m going forward with this new aneurysm the drs see it!

      1. That is frightening when test results are confusing or conditins are overlooked. I'm glad you are getting the treatment you need now! Warmly, Kathy (Team member)

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